Thursday, 30 June 2016

Where have all the rainbows gone?

We've had some sunshine and heavy showers,
Had changable weather hour after hour.
So there's just one thing I'd like to know,
Where did all the Rainbows go?

We've enjoyed the sun's rays after the rain,
Looked up at the sky again and again.
But the rainbow has vanished, our colourful friend,
The one with no beginning and no visible end.

No pots of gold, or rainbow chasing.
No wishing you could climb one and have sliding races.
We lived through the storm waiting for that prism of light...
But when one does not show - it does not feel right.

Still we plod on, it's all just the same,
Just a little bit broken by our normal every day.
It's all a bit weary, we are splitting at the seams,
We need the rainbows back to remind us to dream.

To bring us together, to help us see colour,
To unite us in joy remind us be kind to each other.
We need those peace filled colours brushed across our sky,
To bring us together as dreamers - you and I.





Monday, 13 June 2016

Nine years and me

9...

9 years of hugs and love and laughter and wonder.

9 years of progress, adventures, family.

9 years of watching you grow, stand your own, find out who you are.

9 years of being your Mum.

This time 9 years ago, 4 days before you were born, we were filled with ideals and day dreams.  Picture perfect 2.4 children family, milestones hit, what activities we would sign you up for, holidays and day trip sketched out in earnest.

Then you arrived... hap hazardly, scarily, not quite as we had planned.  Little were we to know the 'not quite as planned' beginning was mealy the start of a trend.

I know birthdays are filled with joy and cake and love and friends, but they are also filled with acknowledgement of what has been and what could be, the ever moving treadmill going forwards.  But I struggle.  I openly admit I struggle, and no matter what party we throw, the gift we give you, the food we eat it never feels enough for me.  There is  always a hollowness, a time marker of when things changed, when you came into our world not kicking and screaming but blue and silent unaware that was simply the start of our parenting fears. 
Birthdays mark reminders of where we have come from, the paths we have taken, the news we have heard, the Drs we have seen, the tears we have shed, the lives we sometimes don't recognise.  Birthdays remind me of where you should be, what should have been and although they made me sad when the walking, talking milestones were gapingly obvious on your 2nd, 3rd and 4th birthdays, we now have a new void... no longer physical but a  learning and processing difference which will only grow and cannot be fixed.  My heart is so heavy with this.

I have the banners to make, the cake will be done and the balloons will be blown.  I will watch you open your gifts and beam with thanks.  I will be proud we have made it to here, yet slightly deflated that it is not where I want to be and I wonder if that acceptance will ever truly follow.

The next few years are big ones and time does its thing even if we are not ready.  I was blessed you wanted me to hold your hand longer than most.  I was honoured that you called me your best friend years after your peers school friendships were solid.  But I have a heart scarred from breaking promises of 'not again' when the Drs came with more tests and exercises and they will never heal... not properly. 

I hope that I am enough.

That despite my sadness and loss and skewed view of this happy day you know we would move mountains to help you. I will write, chase, challenge whoever I need to to make sure you can be your very best, whatever that is.  And you are lucky, so very very lucky, to be surrounded by friends who will always have your back - something many people, even as adults never truly find.

I am not a little lost because of you, I am at a loss because of me.  I am stuck wanting to change things I can't, that I am being diverted down a road that I dislike and despite the wonderful roses in the hedgerows and the sun setting over the fields I am still angry that I am not where I thought I would be.  

And then you will be 9...

9 years of wanting more.

9 years of feeling like I have failed.

9 years of anger and confusion and shouting to any deity that might be listening that they have fucked
this up good and proper, because I don't think I deserve this.  You don't... we don't.

9 years or asking what did I do wrong?

9 years of never quite accepting.

And that is a very long time to be bitter.

I am selfish to act like this day is mine, that I have a right to feel defeated on the one day a year that is all about you.  And it is your day, truly it is.  But when you popped into our lives you let in monsters and gremlins we never expected, and although you are a brave knight and have conquered so many of them, they are always in the shadows though seeming smaller as time passes.  When your life began, mine completely changed and that is why birthdays are always a paradox - the joy of parenthood, of seeing all you have achieved, but with a tarnish of a sadness I could never explain.

I love you son... fiercely and protectively and in a way I underestimated.  You have re-written the rule book,  done things in your time, in your way.  You have taught me about patience and determination, you have bought me friends I could not be without.  Our life is a very different colour to the one we had before you or could have ever predicted. 

And most days that is enough. 


But you are nearly 9... and somehow birthdays just feel that little bit different.